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Is the drug, Rituximab that has helped so many ME patients among the many uninvestigated complaints against the maker?
Are adverse reactions being overlooked?
http://www.reuters.com/article/2012/06/21/us-roche-europe-idUSBRE85K1NH20120621
http://www.fiercepharma.com/story/roche-overlooks-80000-adverse-reaction-complaints/2012-06-21
What happens now?
Please share or reblog.
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Is the drug, Rituximab that has helped so many ME patients among the many uninvestigated complaints against the maker?

Are adverse reactions being overlooked?

http://www.reuters.com/article/2012/06/21/us-roche-europe-idUSBRE85K1NH20120621

http://www.fiercepharma.com/story/roche-overlooks-80000-adverse-reaction-complaints/2012-06-21

What happens now?

Please share or reblog.

    • #rituximab
    • #CFS
    • #ME
    • #myalgic encephalomyelitis
    • #chronic fatigue syndrome
    • #chronic pain
    • #Chronic Immune Dysfunction syndrome
    • #POTS
    • #EDS
    • #Elizabeth Fall
    • #sarah whitestone
    • #Epstein Barr Virus
    • #epstein barr
  • 11 months ago
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Tune in to The CFSAC Meeting. Live Streaming Video Today!

WHEN:

9:00 am – 5:00 pm EST
Wednesday and Thursday, June 13 - 14, 2012

WHO:
Join the Chronic Fatigue Syndrome Advisory Committee (CFSAC) as they discuss the current issues of chronic fatigue syndrome. Dr. Howard K. Koh, Assistant Secretary for Health, will administer the oath of office to four new committee members on June 13, 2012.

Guest speakers will discuss childhood chronic fatigue syndrome and include Peter C. Rowe, M.D. Professor of Pediatrics at the Johns Hopkins Children’s Center and Gail Houle PhD. Associate Division Director, Office of Special Education Programs, Department of Education.

LiveStream Link  http://www.hhs.gov/live/

Learn more at http://www.hhs.gov/advcomcfs/

Source: hhs.gov

    • #CFIDS
    • #CFS
    • #CFSAC
    • #Chronic Immune Dysfunction syndrome
    • #EDS
    • #Elizabeth Fall
    • #ME
    • #Obama
    • #Postural Orthostatic Tachycardia Syndrome
    • #Speak Up About ME
    • #chronic fatigue syndrome
    • #lizzie fall
    • #post viral syndrome
    • #sarah whitestone
    • #myalgic encephalomyelitis
  • 11 months ago
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All in the mind? Why critics are wrong to deny the existence of chronic fatigue

Read the article here . Click on the link. 

    • #cfids
    • #cfs
    • #chronic fatigue syndrome
    • #chronic illness
    • #invisible illness
    • #m.e
    • #me/cfs
    • #myalgic encephalomyelitis
    • #Epstein Barr Virus
    • #Mono
    • #Chronic Immune Dysfunction syndrome
    • #ME
    • #post viral syndrome
    • #lizzie fall
    • #sarah whitestone
  • 1 year ago
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May 12th is International NeuroImmune Invisible Disease Awareness Day!

May 12th dot org want you to email them your story, photographs, poems, art, video’s to be put up on the May12thDotOrg YouTube channel 

Contribute your story now to may12globalaction@gmail.com 

We want to be swamped with stories!

Pay It Forward For ME !

    • #May 12
    • #CFS
    • #ME
    • #myalgic encephalomyelitis
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #POTS
    • #Postural Orthostatic Tachycardia Syndrome
    • #Epstein Barr Virus
    • #Epstein Barr Virus
    • #EDS
    • #eh
    • #Ehlers Danlos syndrome
    • #dysautonomia
    • #lizzie fall
    • #sarah whitestone
  • 1 year ago
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Learn more about ME/CFS. This part 5 of a series 6 videos.

The title is: Crime of deception: HGRV epidemic the CDC call “CFS” 

Do you know what day May 12th is?

    • #cfs
    • #Epstein Barr Virus
    • #Epstein Barr Virus
    • #ME
    • #myalgic encephalomyelitis
    • #CFIDS
    • #Lizzie Fall
    • #sarah whitestone
  • 1 year ago
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Learn more about ME/CFS. This part 4 of a series 6 videos.

The title is: Crime of deception: HGRV epidemic the CDC call “CFS” 

Do you know what day May 12th is?

    • #CFS
    • #chronic fatigue syndrome
    • #ME
    • #myalgic encephalomyelitis
    • #Epstein Barr Virus
    • #epstein barr
    • #MS
    • #Lizzie Fall
    • #sarah whitestone
    • #CDC
  • 1 year ago
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Learn more about ME/CFS. This part 3 of a series 6 videos.

The title is: Crime of deception: HGRV epidemic the CDC call “CFS” 

Do you know what day May 12th is?

    • #CFS
    • #ME
    • #myalgic encephalomyelitis
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #Epstein Barr Virus
    • #epstein barr
    • #Lizzie Fall
    • #sarah whitestone
  • 1 year ago
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Learn more about ME/CFS. This part 2 of a series 6 videos.

The title is: Crime of deception: HGRV epidemic the CDC call “CFS” 

Do you know what day May 12th is?

    • #CFS
    • #ME
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #Epstein Barr Virus
    • #post viral syndrome
    • #Postural Orthostatic Tachycardia Syndrome
    • #EDS
    • #Epstein Barr Virus
    • #myalgic encephalomyelitis
    • #sarah whitestone
  • 1 year ago
  • 2
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Pay it Forward For ME

About

Who's your ME/CFS doctor?

A GET BETTER LIZZIE FUND has been set up by friends that want to see Lizzie get well. Please scroll down below for more information.

We created this blog in order to help spread awareness of the debilitating illness Myalgic Encephalomyelitis -Chronic Fatigue Syndrome.

To make a donation to The Elizabeth Fall Medical Fund please donate via Pay Pal

"The Elizabeth Fall Medical Fund" To make a donation through the mail:

Wells Fargo Bank 1490 Holcomb Bridge Road Roswell, Georgia 30076 Attention: “The Elizabeth Fall Medical Fund”

Please email for account number

payitforwardforme@gmail.com

Follow Me on Pinterest The medical community needs to start taking this illness seriously on a physical scale rather than a psychological one.We also promote self-advocacy. Please scroll down and visit my website.

Pages

  • About Lizzie
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  • Tell The Media To Do A Story
  • Make A Difference
  • Contact Senate Decision Makers
  • Contact House Decision Makers
  • CFSAC Testimony 11/11
  • Chronic Fatigue Syndrome Advisory Committee
  • CFSAC Committee Recommendations
  • Resources

Me, Elsewhere

  • @payit4ward4ME on Twitter
  • myinvisibleillness on Youtube

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