23
Jun
Is the drug, Rituximab that has helped so many ME patients among the many uninvestigated complaints against the maker?
Are adverse reactions being overlooked?
http://www.reuters.com/article/2012/06/21/us-roche-europe-idUSBRE85K1NH20120621
http://www.fiercepharma.com/story/roche-overlooks-80000-adverse-reaction-complaints/2012-06-21
What happens now?
Please share or reblog.

Is the drug, Rituximab that has helped so many ME patients among the many uninvestigated complaints against the maker?

Are adverse reactions being overlooked?

http://www.reuters.com/article/2012/06/21/us-roche-europe-idUSBRE85K1NH20120621

http://www.fiercepharma.com/story/roche-overlooks-80000-adverse-reaction-complaints/2012-06-21

What happens now?

Please share or reblog.

13
Jun
Tune in to The CFSAC Meeting. Live Streaming Video Today!

WHEN:

9:00 am – 5:00 pm EST
Wednesday and Thursday, June 13 - 14, 2012

WHO:
Join the Chronic Fatigue Syndrome Advisory Committee (CFSAC) as they discuss the current issues of chronic fatigue syndrome. Dr. Howard K. Koh, Assistant Secretary for Health, will administer the oath of office to four new committee members on June 13, 2012.

Guest speakers will discuss childhood chronic fatigue syndrome and include Peter C. Rowe, M.D. Professor of Pediatrics at the Johns Hopkins Children’s Center and Gail Houle PhD. Associate Division Director, Office of Special Education Programs, Department of Education.

LiveStream Link  http://www.hhs.gov/live/

Learn more at http://www.hhs.gov/advcomcfs/

30
Apr

May 12th is International NeuroImmune Invisible Disease Awareness Day!

May 12th dot org want you to email them your story, photographs, poems, art, video’s to be put up on the May12thDotOrg YouTube channel 

Contribute your story now to may12globalaction@gmail.com 

We want to be swamped with stories!

Pay It Forward For ME !

27
Apr
What’s up with this announcement? 
Where’s the info to sign up for public comment?
The CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Sign up by emailing cfsac@hhs.gov FAX 202 401-4005 

Check out this now! http://payitforwardforme.tumblr.com/CFSAC

Invite your senator and congressman to the meeting!

What’s up with this announcement?

Where’s the info to sign up for public comment?

The CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Sign up by emailing cfsac@hhs.gov FAX 202 401-4005 
Invite your senator and congressman to the meeting!
25
Apr
Here are the CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
cfsac@hhs.gov

Check out this now! http://payitforwardforme.tumblr.com/CFSAC

Invite your senator and congressman to the meeting!

Here are the CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Invite your senator and congressman to the meeting!