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Hello everyone! Happy Thursday. Please tune into the FDA advisory meeting starting now. They will be talking about Ampligen. This is personal for myself and Lizzie. We need more treatment options. We support more treatment options. FYI…Lizzie has been showing some improvement with IVIG infusion therapy but nothing spectacular! She’s been receiving IVIG monthly since her 18th birthday , August 29, 2012.Please check out the meeting. Show support. Live now!
https://collaboration.fda.gov/aac122012/?launcher=false





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Hello everyone! Happy Thursday. Please tune into the FDA advisory meeting starting now. They will be talking about Ampligen. This is personal for myself and Lizzie. We need more treatment options. We support more treatment options. FYI…Lizzie has been showing some improvement with IVIG infusion therapy but nothing spectacular! She’s been receiving IVIG monthly since her 18th birthday , August 29, 2012.
Please check out the meeting. Show support. Live now!

https://collaboration.fda.gov/aac122012/?launcher=false
Connect Pro Meeting Login
collaboration.fda.gov

Source: collaboration.fda.gov

    • #FDA
    • #ME
    • #CFS
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #myalgic encephalomyelitis
    • #Amligen
    • #Ampligen
    • #Postural Orthostatic Tachycardia Syndrome
    • #post viral syndrome
    • #Prohealth.com
    • #Obama
    • #lizzie fall
  • 5 months ago
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Why it’s Important that Obama Wins

I want to remind people especially those suffering from ME/CFS, HOW IMPORTANT IT IS that Obama wins the election tomorrow. 

Hopefully you know the story of how Courtney Miller asked the President last year in Reno to help her husband Bob Miller (who suffers from Chronic Fatigue Syndrome.) 

Here is the video of Courtney asking the President for help:

About a year later the President responded to Courtney Miller’s request. 

Here is a link to that letter: http://phoenixrising.me/wp-content/uploads/President-Obama-Letter-on-CFS.pdf

Do you see how huge this is? I’m not very good at explaining things, but Obama cares about us. He cares about the funding of this terrible disease. He even refer to CFS as Myagic Encephalomyelitis in his letter! That in itself is huge! It’s a step in getting the name changed! ProHealth’s Rich Carson explaining the importance very well in his letter to the ME/CFS patient.

Courtney Miller’s emotional plea to the president opened the door to change and resulted in two things that ME/CFS patients have never had: respect and validation. President Obama not only took the time to study ME/CFS thoroughly, he proved it by referring to the disease as both Chronic Fatigue Syndrome and Myalgic Encephalomyelitis, showing that the highest official in the nation knows that CFS and Myalgic Encephalomyelitis are indeed the same disease. 

The President responded by asking the nation’s top health officials to look carefully at ME/CFS to see if the government can do more. And he still wants more feedback. Because of this, patients have the opportunity to be heard by the President of the United States about the disease that has cost us so dearly. We are finally looking at a golden opportunity to right two monstrous wrongs at the same time: to get fair funding, and to change the trivializing, degrading name Chronic Fatigue Syndrome to the medical name that has been used for 60 years in more than 50 countries - Myalgic Encephalomyelitis. It is time for the hurtful, humiliating ‘fatigue’ label disappeared forever. 

There you go people! Vote Obama tomorrow if you want to see more funding in the CFS community! I know I’m voting for him! 

Source: prohealth.com

    • #cfs
    • #chronic fatigue syndrome
    • #chronic illness
    • #fibromyalgia
    • #invisible illness
    • #m.e
    • #me/cfs
    • #myalgic encephalomyelitis
    • #spoonie
    • #obama
  • 6 months ago
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Natural is beautiful.
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Natural is beautiful.

    • #natural
    • #CFS
    • #Me
    • #myalgic encephalomyelitis
  • 7 months ago
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NautralNews.com editor, Mike Adams explains how studies in cell research have demonstrated the mechanism by which micro RNA from genetically engineered foods may alter human organ function.

    • #GMO
    • #CFS
    • #ME
    • #myalgic encephalomyelitis
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #Epstein Barr Virus
    • #mono
    • #mononucleosis
  • 7 months ago
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Today October 4th, The Chronic Fatigue Syndrome Advisory Committee wraps up at 5pm est. Feel free to catch some of the meeting.

http://www.hhs.gov/live/ 

For today’s agenda, scroll down to October 4th. http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac20121003_agenda.html

    • #CFSAC
    • #HHS
    • #CFS
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #ME
    • #myalgic encephalomyelitis
    • #Government
    • #SSD
    • #SS
    • #Social Security
    • #Epstein Barr Virus
    • #Mono
    • #Mononucleosis
    • #Teenagers
  • 7 months ago
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How much pesticides are in the food you eat?

The Environmental Working Group analyzed 10 years worth of data from the USDA & US Department of Agriculture to make up their 2012 Shopper’s Guide to Pesticides in Produce. The website even has AP’s for IPhones and Android Devices : http://www.ewg.org/foodnews/guide

Dirty Dozen Plus

Buy these organic. The lower the number the MORE pesticide was found!

1
Apple
Apples
2
Celery
Celery
3
Red Pepper
Sweet bell peppers
4
Peaches
Peaches
5
Strawberries
Strawberries
6
Nectarines
Nectarines
– imported
7
Grapes
Grapes
8
Spinach
Spinach
9
Lettuce
Lettuce
10
Cucumber
Cucumbers
11
Blueberries
Blueberries 
– domestic
12
Potatoe
Potatoes
Plus
+
Green Beans
Green beans
+
Kale
Kale/Greens

+ May contain pesticide residues of special concern

Clean 15
Lowest in Pesticide
1
Onions
Onions
2
Sweet Corn
Sweet Corn
3
Pineapple
Pineapples
4
Avocado
Avocado
5
Cabbage
Cabbage
6
Peas
Sweet peas
7
Asparagus
Asparagus
8
Mango
Mangoes
9
Eggplant
Eggplant
10
Kiwi
Kiwi
11
Cantelope
Cantaloupe 
- domestic
12
Sweet Potatoes
Sweet potatoes
13
Grapefruit
Grapefruit
14
Watermelon
Watermelon
15
Mushrooms
Mushrooms
    • #CFS
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #Epstein Barr Virus
    • #Organic
    • #POTS
    • #spoonies
    • #EDS
    • #Gluten free
    • #Fruits
    • #Food
    • #Diet
    • #Natural
  • 8 months ago
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Source: pinterest.com

    • #CFS
    • #chronic fatigue syndrome
    • #myalgic encephalomyelitis
    • #m.e
    • #CFIDS
    • #chronic illness
    • #invisible illness
  • 8 months ago
  • 44
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Chase Community Giving: VOTE FOR ME/CFS

Hey guys! Make sure you vote for the ME/CFS charities out there! There’s a lot of money that can be raised if you all vote, and it’s actually really super easy to do so. Reblog this to let other people know! 

The Chase Community Giving contest has a lot of money ($5 million) to give as grants to the 196 charities in their eligible nominated organizations list that get the most Facebook member votes by Tuesday, September 18. 

If you are a registered Facebook member you can vote for two of the listed charities. (Chase customers get two more votes.)

And if you share a link to a charity by clicking a button (Like, Tweet, Send or Copy) - and by doing that get someone else to vote - you will earn a bonus vote you can use for any organization you choose; even one you have already voted for. 

TO GET STARTED, go to the contest Facebook page 
(http://apps.facebook.com/ChaseCommunityGiving)

• Click “allow application” so that you can vote,

• And search for organizations either by typing key words in the search box (e.g., fibromyalgia or ME/CFS) or scrolling down to browse the alphabetical listing or listing by category.

At this writing, two organizations advocating for people with neuro-immune illnesses are in the top 196 – the Neuro Immune Disease Alliance (NIDA) with 1464 votes and Phoenix Rising an NEID Corporation with 729 votes.

To find the list of the top 196 ranked by current number of votes, click on “Leaderboard” in the blue menu bar at the top of the Chase Giving page. 

QUESTIONS/PROBLEMS with voting? Email support@chasegiving.com

Source: prohealth.com

    • #cfs
    • #chronic fatigue syndrome
    • #myalgic encephalomyelitis
    • #m.e
    • #chronic illness
    • #invisible illness
  • 8 months ago
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Pay it Forward For ME

About

Who's your ME/CFS doctor?

We created this blog in order to help spread awareness of the debilitating illness Myalgic Encephalomyelitis -Chronic Fatigue Syndrome.

Pages

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  • Chronic Fatigue Syndrome Advisory Committee
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Me, Elsewhere

  • @payit4ward4ME on Twitter
  • myinvisibleillness on Youtube

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