Pay it Forward For ME

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    • #CFS
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    • #myalgic encephalomyelitis
    • #chronic illness
    • #POTS
    • #Neuro endrocrine
    • #eds
    • #lizzie fall
  • 1 year ago
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May 12th is International NeuroImmune Invisible Disease Awareness Day!

May 12th dot org want you to email them your story, photographs, poems, art, video’s to be put up on the May12thDotOrg YouTube channel 

Contribute your story now to may12globalaction@gmail.com 

We want to be swamped with stories!

Pay It Forward For ME !

    • #May 12
    • #CFS
    • #ME
    • #myalgic encephalomyelitis
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #POTS
    • #Postural Orthostatic Tachycardia Syndrome
    • #Epstein Barr Virus
    • #Epstein Barr Virus
    • #EDS
    • #eh
    • #Ehlers Danlos syndrome
    • #dysautonomia
    • #lizzie fall
    • #sarah whitestone
  • 1 year ago
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This is an old report. Adequate progress in researching ME/CFS is absurdly lacking!

Do you know what day May 12th is?

    • #CFS
    • #chronic fatigue syndrome
    • #Chronic Immune Dysfunction syndrome
    • #ME
    • #myalgic encephalomyelitis
    • #Epstein Barr Virus
    • #epstein barr
    • #POTS
    • #Lizzie Fall
  • 1 year ago
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Learn more about ME/CFS. This part 1 of a series 6 videos.

The title is: Crime of deception: HGRV epidemic the CDC call “CFS” 

Do you know what day May 12th is?

    • #chronic fatigue syndrome
    • #ME
    • #myalgic encephalomyelitis
    • #POTS
    • #Epstein Barr Virus
    • #epstein barr
    • #Lizzie Fall
    • #CDC
  • 1 year ago
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The Twelve Days of Chronic Fatigue Syndrome/ME are coming up !
Do you know what May 12th is?
☛ Pay It Forward For ME/CFS ☛
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The Twelve Days of Chronic Fatigue Syndrome/ME are coming up !

Do you know what May 12th is?

☛ Pay It Forward For ME/CFS ☛

    • #CFS
    • #Me
    • #ME
    • #chronic fatigue syndrome
    • #chronic fatigue syndrome
    • #ME
    • #myalgic encephalomyelitis
    • #POTS
    • #EDS
    • #invisible illness
    • #Lizzie Fall
    • #Postural Orthostatic Tachycardia Syndrome
    • #Computers
    • #Programming
    • #Java
  • 1 year ago
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What’s up with this announcement? 
Where’s the info to sign up for public comment?
The CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Sign up by emailing cfsac@hhs.gov FAX 202 401-4005 

Check out this now! http://payitforwardforme.tumblr.com/CFSAC

Invite your senator and congressman to the meeting!
Pop-upView Separately

What’s up with this announcement?

Where’s the info to sign up for public comment?

The CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Sign up by emailing cfsac@hhs.gov FAX 202 401-4005 
Check out this now! http://payitforwardforme.tumblr.com/CFSAC
Invite your senator and congressman to the meeting!
    • #CFS
    • #chronic fatigue syndrome
    • #chronic fatigue syndrome
    • #Me
    • #myalgic encephalomyelitis
    • #POTS
    • #Postural Orthostatic Tachycardia Syndrome
    • #Epstein Barr Virus
    • #epstein barr
    • #lizzie fall
    • #sarah whitestone
    • #POTS
    • #Postural Orthostatic Tachycardia Syndrome
    • #post viral syndrome
    • #EDS
  • 1 year ago
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Here are the CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
cfsac@hhs.gov

Check out this now! http://payitforwardforme.tumblr.com/CFSAC

Invite your senator and congressman to the meeting!
Pop-upView Separately


Here are the CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
cfsac@hhs.gov
Check out this now! http://payitforwardforme.tumblr.com/CFSAC
Invite your senator and congressman to the meeting!

    • #CFSAC
    • #ME
    • #myalgic encephalomyelitis
    • #Chronic Immune Dysfunction syndrome
    • #chronic fatigue syndrome
    • #chronic illness
    • #chronic pain
    • #POTS
    • #EDs
    • #Epstein Barr Virus
    • #epstein barr
    • #lizzie fall
    • #sarah whitestone
  • 1 year ago
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Pay it Forward For ME

About

Who's your ME/CFS doctor?

We created this blog in order to help spread awareness of the debilitating illness Myalgic Encephalomyelitis -Chronic Fatigue Syndrome.

Pages

  • About Lizzie
  • You Tube Videos
  • Tell The Media To Do A Story
  • Make A Difference
  • Contact Senate Decision Makers
  • Contact House Decision Makers
  • CFSAC Testimony 11/11
  • Chronic Fatigue Syndrome Advisory Committee
  • CFSAC Committee Recommendations
  • Resources

Me, Elsewhere

  • @payit4ward4ME on Twitter
  • myinvisibleillness on Youtube

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