27
Apr
What’s up with this announcement? 
Where’s the info to sign up for public comment?
The CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Sign up by emailing cfsac@hhs.gov FAX 202 401-4005 

Check out this now! http://payitforwardforme.tumblr.com/CFSAC

Invite your senator and congressman to the meeting!

What’s up with this announcement?

Where’s the info to sign up for public comment?

The CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Sign up by emailing cfsac@hhs.gov FAX 202 401-4005 
Invite your senator and congressman to the meeting!
25
Apr
Here are the CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
cfsac@hhs.gov

Check out this now! http://payitforwardforme.tumblr.com/CFSAC

Invite your senator and congressman to the meeting!

Here are the CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Invite your senator and congressman to the meeting!
21
Apr
***GLOBAL ACTION!!!***"20th” Anniversary
Neuroimmune Diseases
International Awareness Day
Events~~~WORLDWIDE USA TEAM~~~
 
 
Please ”JOIN” us for campaigning onFriday, May 11, 2012, or    Saturday, May 12, 2012to support the"20th" AnniversaryInternational Awareness Dayin every way you can!
 
Some ways of promoting Awareness Day is to phone, e-mail, and/or fax to politicians, news media and public health officials.
 
We should plan a coordinated RALLY/ ACTIONS in many locations ALL over the World and invite the news media!***Let’s take this a step further & INVITE: The Girl Scouts, Boy Scouts, Legions, Universities, Colleges, schools,  International    or American Camp (ing) Associations, Veterans, Veterinarians, Pharmacists, doctors, nurses, cosmetologists, barbers, teachers, students, physical trainers,  blood banks, etc.. 
 
 
***ACTION/RALLY/ PROTESTS*** at the following:
-   government health offices
-  major cities, state capitols, provinces, regionshospitals, clinics
-   protest from bed if necessary, even if the protest is only one person
-   on-line by recording and putting the video on youtube
 
That way we make a huge splash:
*** First day local (either Fri. May 11, or Sat. May 12th  ~whatever day is better for your location!) ~        in person, and the second day global      and on the internet!
 
 
Using visual aids like: ~~~Picket signs, brochures, wearing t-shirts, buttons or ribbons, wearing prison clothes (trapped in our own bodies with shackles),  canes, walkers, wheelchairs, motor scooters, beds, blankets, pillows, sunglasses, ice packs, heating pads, sacks with our meds & supplements,  side  walk  chalk outlines, or  a casket (with names of those deceased), mannequins (for those who are unable to attend, with attached picture/statement of someone who is bedbound/housebound & can’t make it),  tent or cardboard  box house (for those who lost their home due to illness), human hamster ball (like living life in a bubble),  tie ribbons to visible trees, yard signs, wristbands, carry ketchup in ziplock baggies to simulate BLOOD & ANYTHING else we can DO to GET THE WORLD’s ATTENTION!!!!
 
 *PLEASE support us by “joining” our FB GLOBAL Event for AWARENESS  May 12, 2012 at: http://www.facebook.com/events/310053762368288/   ~~~WE NEED more PEOPLE to COMMIT to an AWARENESS RALLY at ALL IMPACT Locations, including the IOWA TEAM @ the Des Moines Capitol BLDG., *PLEASE “JOIN” us if you are able!http://www.facebook.com/profile.php?id=1452595099#!/events/337226382990901/ 

***GLOBAL ACTION!!!***
"20th” Anniversary
Neuroimmune Diseases
International Awareness Day
Events
~~~WORLDWIDE USA TEAM~~~
 
 
Please ”JOIN” us for campaigning on
Friday, May 11, 2012, or    
Saturday, May 12, 2012
to support the
"20th" Anniversary
International Awareness Day
in every way you can!
 
Some ways of promoting Awareness Day is to phone, 
e-mail, and/or fax to politicians, news media and public health officials.
 
We should plan a coordinated RALLY/ ACTIONS in many locations ALL over the World and invite the news media!

***Let’s take this a step further & INVITE: 

The Girl Scouts, Boy Scouts, Legions, Universities, Colleges, schools,  International    or American Camp 
(ing) Associations, Veterans, Veterinarians, Pharmacists, doctors, nurses, cosmetologists, barbers, teachers, students, physical trainers,  blood banks, etc.. 
 
 
***ACTION/RALLY/ PROTESTS*** at the following:
-   government health offices
-  major cities, state capitols, provinces, regions
hospitals, clinics
-   protest from bed if necessary, even if the protest is only one person
-   on-line by recording and putting the video on youtube
 
That way we make a huge splash:
*** First day local (either Fri. May 11, or Sat. May 12th  ~whatever day is better for your location!) ~ 
       in person, and the second day global
      and on the internet!
 
 
Using visual aids like: 

~~~Picket signs, brochures, 
wearing t-shirts, buttons or ribbons, 
wearing prison clothes (trapped in our own bodies with shackles),  
canes, walkers, wheelchairs, motor scooters, 
beds, blankets, pillows, sunglasses, ice packs, heating pads, 
sacks with our meds & supplements,  side  walk  chalk outlines, or  a casket (with names of those deceased), 
mannequins (for those who are unable to attend, with attached picture/statement of someone who is bedbound/housebound & can’t make it),  
tent or cardboard  box house (for those who lost their home due to illness), 
human hamster ball (like living life in a bubble),  
tie ribbons to visible trees

yard signs, wristbands, 
carry ketchup in ziplock baggies to simulate 
BLOOD & ANYTHING else we can DO to 
GET THE WORLD’s ATTENTION!!!!
 

 *PLEASE support us by “joining” our FB GLOBAL Event for AWARENESS  May 12, 2012 at: 
http://www.facebook.com/events/310053762368288/   

~~~WE NEED more PEOPLE to COMMIT to an AWARENESS RALLY at ALL IMPACT Locations, including the IOWA TEAM @ the Des Moines Capitol BLDG., 
*PLEASE “JOIN” us if you are able!
http://www.facebook.com/profile.php?id=1452595099#!/events/337226382990901/ 

18
Apr
Hey! We need everyone to start Paying It Forward For ME. We can make change happen! Please call you Senator’s or Congressman’s office today. It only take a few minutes. Tell them your story. Ask the politician what they are doing for specifically To make more treatments available and more funding for research for a CURE! http://payitforwardforme.tumblr.com/makeadifference

Hey! We need everyone to start Paying It Forward For ME. We can make change happen! Please call you Senator’s or Congressman’s office today. It only take a few minutes. Tell them your story. Ask the politician what they are doing for specifically To make more treatments available and more funding for research for a CURE! http://payitforwardforme.tumblr.com/makeadifference