4
Oct

Today October 4th, The Chronic Fatigue Syndrome Advisory Committee wraps up at 5pm est. Feel free to catch some of the meeting.

http://www.hhs.gov/live/ 

For today’s agenda, scroll down to October 4th. http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac20121003_agenda.html

15
Jun
During The Chronic Fatigue Syndrome Advisory Committee meeting this week, ME/CFS experts,The International Association of Chronic Fatigue Syndrome Myaligic Encephalomyelitis (IACFSME)presented A Primer For Clinical Practioners. Take a look.  
http://www.iacfsme.org/Portals/0/PDF/PrimerFinal3.pdf 


During The Chronic Fatigue Syndrome Advisory Committee meeting this week, ME/CFS experts,The International Association of Chronic Fatigue Syndrome Myaligic Encephalomyelitis (IACFSME)presented A Primer For Clinical Practioners. Take a look.  

13
Jun
Tune in to The CFSAC Meeting. Live Streaming Video Today!

WHEN:

9:00 am – 5:00 pm EST
Wednesday and Thursday, June 13 - 14, 2012

WHO:
Join the Chronic Fatigue Syndrome Advisory Committee (CFSAC) as they discuss the current issues of chronic fatigue syndrome. Dr. Howard K. Koh, Assistant Secretary for Health, will administer the oath of office to four new committee members on June 13, 2012.

Guest speakers will discuss childhood chronic fatigue syndrome and include Peter C. Rowe, M.D. Professor of Pediatrics at the Johns Hopkins Children’s Center and Gail Houle PhD. Associate Division Director, Office of Special Education Programs, Department of Education.

LiveStream Link  http://www.hhs.gov/live/

Learn more at http://www.hhs.gov/advcomcfs/

25
Apr
Here are the CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
cfsac@hhs.gov

Check out this now! http://payitforwardforme.tumblr.com/CFSAC

Invite your senator and congressman to the meeting!

Here are the CFSAC meeting dates June 13 & Jun 14 and it will be webcast http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
If you want to sign up, please email now. Slots fill up very fast!
Invite your senator and congressman to the meeting!
26
Mar
This is a call to all young people. It’s time. It’s time to tell the President, Congress and Health and Human Services Secretary Kathleen Sebelius that we have had enough of being ignored. We have to be louder!
The Chronic Fatigue Syndrome Advisory Committee  will be announcing their public meeting dates very SOON. Please check their site every day from now until they post the meeting dates. 
Please tell President Obama, Congress and Health and Human Services Director Kathleen Sebelius we won’t be ignored anymore. We are tired of our disease being passed over year after year for proper funding for research, education, better treatment options and a cure.
We deserve to live a better quality of life. We are the future and we need to be louder to let them know we are the change we seek. We are the change coming to Washington. We are the future doctors, lawyers, engineers, politicians,mothers and fathers, brothers and sisters of the future. We need to be healed now so we can be healthier to take care of this country later when it’s our turn. 
Please if you have ME/CFS tell your story…tell them your dreams…ask them why they aren’t doing anything…they owe it to you.
For more info…go to this page on our website.
Don’t STOP Tweeting until Washington hears us. Don’t Stop.
Never give up!     Please Re-blog if you are tired of being sick and tired!

This is a call to all young people. It’s time. It’s time to tell the President, Congress and Health and Human Services Secretary Kathleen Sebelius that we have had enough of being ignored. We have to be louder!

The Chronic Fatigue Syndrome Advisory Committee  will be announcing their public meeting dates very SOON. Please check their site every day from now until they post the meeting dates. 

Please tell President Obama, Congress and Health and Human Services Director Kathleen Sebelius we won’t be ignored anymore. We are tired of our disease being passed over year after year for proper funding for research, education, better treatment options and a cure.

We deserve to live a better quality of life. We are the future and we need to be louder to let them know we are the change we seek. We are the change coming to Washington. We are the future doctors, lawyers, engineers, politicians,mothers and fathers, brothers and sisters of the future. We need to be healed now so we can be healthier to take care of this country later when it’s our turn. 

Please if you have ME/CFS tell your story…tell them your dreams…ask them why they aren’t doing anything…they owe it to you.

For more info…go to this page on our website.

Don’t STOP Tweeting until Washington hears us. Don’t Stop.

Never give up!     Please Re-blog if you are tired of being sick and tired!