Thought I’d give everyone an update on how I’ve been feeling lately. Well, I haven’t been able to do much. Recently been lowering my dose of stimulants and my body is having a hard time adjusting considering I’ve been on stimulants for almost a year now. Fortunately, I’ve noticed my POTS symptoms have overwhelmingly gotten better since lowering off of the stimulants which is fantastic. My feet have been swelling less, my heart rate is going down a little, and my heat intolerance/sweating have been greatly reduced! So this is awesome.
On the flipside, my hunger has increased, my fatigue has DEFINITELY increased, along with my brain fog as well.
Despite this, I’ve tried to do some light exercise lately. I’m going to the gym every other day with my brother to do some light walking on the treadmill. I went yesterday and yeah, I’m having some post-exertional malaise today for SURE. But at least I have today and part of tomorrow to recover.
Missing my friends because I haven’t been able to socialize much lately. Really trying my best to finish out my Anatomy and Chemistry online courses. Anatomy is going well, but Chemistry has been pretty difficult. Oh well, I’m sure it’ll all work out in the end.
So that’s about it for me! I hope everyone is having a good day, and don’t forget to help spread awareness for ME!
Hey everyone! I will be meeting with my Senator’s office and maybe even Georgia Senator Isakson. Someone from his office will be at the CFSAC meeting. Yay! Please call you senator and/or email them. Meet with them if you can. Tell them your story so they know you exist! Go to my website for info on the key players. It’s not that hard. You really can make a difference. Keep the pressure on. http://payitforwardforme.tumblr.com/Senate http://payitforwardforme.tumblr.com/house
hey, thank you for answering my concern about the night sweats. i've had ME for a year now and i've never had that symptom before and i was a bit like.. oh great, what the hell is this now.. thank you anyway. you're doing a great job <3 xxxxxxxx
ME/CFS sufferers: Do you suffer from a cold intolerance or heat intolerance or both?
Many ME/CFS sufferers have trouble regulating their body temperature properly. Personally, I find myself not being able to handle the heat at all. I need the fan on in my room. I wear shorts to bed. I sweat a lot. The heat is just not my friend.
So what do you suffer from? Are you constantly cold? Are you like me? Explain! (:
“It’s all in your head. Think healthy and you’ll be healthy.”
“Pray hard enough to Jesus and he’ll make it go away.”
“You’re SO lucky you just get to hang out all day! I’d LOVE to do that.”
“Have you tried taking this multivitamin/supplement/herb found in a special tree from the amazon/goat cheese/grass? I heard it can cure anything.”
“You should exercise more.”
“You should take a nap.”
“You’re probably just tired.”
“Are you drunk?”
“Are you high?”
“You just need a good doctor.”
“Stop being so lazy!”
“Why are you ignoring me?! I just wanted to go clubbing, God!”
“If you’re REALLY sick then how come you were able to…… go to a friend’s house that one day/sit on a bench at the park that one day/get out of bed and take a shower that one day/talk to your friend on the phone for more than 5 minutes/laugh and smile like you weren’t sick that one day.”
“It’s not like, contagious right?”
“Ugh, I hate being tired too but I push through it.”
“Maybe, if you just pushed yourself hard enough….”
I wanted to write these out because it’s so important for people who are not chronically ill to see how ridiculous and hurtful these kind of statements are. Being chronically ill is nothing like having a cold, being hung over or just being generally tired from lack of good sleep.
Truth is; if you haven’t been chronically ill, you don’t know what it is like.
These are the things people say to your face. Can you imagine what they say behind your back when you’re not around? If you’re chronically ill, what kind of things have people said to you?
This made me think about the stages I have gone through in the last four years. It helps me understand my college experience, and what i went through, battling not only the illness itself, but the emotions that came along with it.