Just to let you all know, my mom helps out with the blog posts on here. (: So, yeah! it may not be me all of the time on here, but don’t hesitate to message me on my personal tumblr which I’m pretty sure most of you know… shhhhh.
“For the chronically ill, details are all. To cope with chronic illness means to routinely scan minute bodily processes. Attention is vigilantly focused, sometimes hour by hour, to the specifics of circumstances and events that could be potential sources of worsening. There is the daily quest for control of the known provoking agents. Enervating decisions must be made about when to initiate or terminate an activity, when to move from baseline medication to second-level drugs, and when to seek professional help. And all this occurs in the context of active lives that are filled with the same pressures, threats, vagaries, and exultations that make of normal living such a ‘blooming, buzzing confusion’ [James] Is it any wonder that exhaustion is one of the common shared experiences of chronic illness?”—Arthur Kleinman, The Illness Narratives (via shanghailil)
I just wanna be heathy so I can go out and not feel completely rubbish afterwards, to make worse it’s sunny outside and I’m thinking of all the things I could be doing if I felt well, I feel like an old lady because my legs and back ache, and I feel tired all the time and my eyes hurt due to lack of sleep. I honestly think the last time I properly went outside was two months ago, and I’ve been feeling a whole lot worse since then.
I’ve been really unwell, i got back to school for the first day back last week and have been off since which sucks :( and yeah it’s not easy to deal with but i’ve finally got an appoitment to see people who can hopefully help me! So there are always positives to look forward too, light at the end…
We must remind ourselves again and again that there is more to our life than our pain. We can still find moments to enjoy. Do you enjoy photography? If you are able, look around your house or your street. Find the beauty right outside your front door. Do you enjoy music? How about taking the time to really listen to it– how each instrument blends with the other to create a beautiful melody. Are you a computer geek like me? Seek out things that you truly enjoy, maybe start your own blog!
Enjoy the people around you. Let them help you or see how you can help them and others. That’s why I started my own support group. I wanted to take take the focus off myself and turn my pain into something good.
The point is, think of things that you are capable of doing, that you really enjoy, and do them! Don’t let your pain take over your life! Your pain does not define you!
“Be not the slave of your own past - plunge into the sublime seas, dive deep, and swim far, so you shall come back with new self-respect, with new power, and with an advanced experience that shall explain and overlook the old.”—Ralph Waldo Emerson (via jaegerjaques)