neptunesummer: When you have an illness, sometimes you have to be selfish and just focus on yourself. It takes so much energy to try and please everyone else and it’s not worth all the emotional and physical stress. You have to do what’s best for you, even if other people are critical of you or don’t understand. You know your body better than anyone else and you can decide what activities you...
its-a-spoonie-life: When you get excited cause you’re seeing a new specialist cause they might actually be able to help you, then you realize you should stop kidding yourself cause they’re all as arrogant and inconsiderate as each other.
I feel like I have the potential to do so much. But not the energy to do it.– (via thechronicallyfatigued)
neptunesummer: Today I sold some of my Pay it Forward for ME bracelets at this community sale thingy ma bober. I was trying my best to raise awareness for ME/CFS! People were generally interested in it. Many said “I’ve never heard of this!” and I just told them “Well… it’s pretty similar to MS” Also a lot of people commented on how “beautiful” I was and that I “looked great”. One person even...
flaresof-fibro asked: YOU HAVE A FANTASTICALLY BEAUTIFULLY WONDEROUS BLOG xoxx
An accurate representation of studying and writing...
chroniccurve: Brain fog: 3 Emily: -9482348234
Why it's Important that Obama Wins
I want to remind people especially those suffering from ME/CFS, HOW IMPORTANT IT IS that Obama wins the election tomorrow. Hopefully you know the story of how Courtney Miller asked the President last year in Reno to help her husband Bob Miller (who suffers from Chronic Fatigue Syndrome.) Here is the video of Courtney asking the President for help: About a year later the President responded...
Today October 4th, The Chronic Fatigue Syndrome Advisory Committee wraps up at 5pm est. Feel free to catch some of the meeting. http://www.hhs.gov/live/ For today’s agenda, scroll down to October 4th. http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac20121003_agenda.html